What to do when compassion becomes too heavy? Caregiver burnout is one of the first things to look out for.
Some would say that a loved one’s illness is harder on the family members than on the person who is aging. Especially when the person suffering is a parent, the role reversal can be jarring, and you may find yourself exhausted, frustrated, and lonely.
If caring for a parent has become psychologically taxing, you may have started experiencing some of the symptoms of burnout.
Also known as caregiver fatigue or caregiver exhaustion, caregiver burnout can have similar symptoms to anxiety and depression. Severe caregiver burnout may make you incapable of caring for your loved one any longer.
In this article, we will define caregiver burnout and talk about how to best manage caregiver burnout.
Before we get started, it’s important to clarify that you are not alone, even if it feels that way. Millions of loved ones experience becoming burnt out, and it does not make you weak or incapable. In fact, it’s a sign of the deep compassion you have for the people you love.
What is Caregiver Burnout?
Many families managing a sick or elderly loved one may enter into a state of physical and mental exhaustion. There are different types of caregiver burnout, including spouse caregiver burnout, stroke caregiver burnout, medical staff or doctor burnout, and parent(s) caregiver burnout. However, then the symptoms are quite similar.
What are the Causes of Caregiver Burnout?
You may begin to experience symptoms of caregiver burnout when you get so wrapped up in caring for a loved one that you neglect to care for yourself.
Your loved one may need an excessive amount of attention right now, and providing them with all that attention on your own can be a nearly impossible task.
Lack of Necessary Resources.
Perhaps you have family members who are not helping you, or who cannot help. Or perhaps for financial reasons, you cannot find the help that your loved one needs. Maybe you work at an understaffed hospital, and you worry about your abilities as just one individual.
Lack of Control Around your Loved One’s Condition
Perhaps at first, you subconsciously believed that through love and care, you could make this person feel better. But this is not always possible, especially with degenerative diseases like Alzheimer’s or Parkinson’s. Taking care of someone tirelessly and only seeing them get worse can be demoralizing and thankless.
Confusion Around your Role as a Caregiver
You were thrust into this position by nature of your relationship to the patient, but you may not be equipped to handle such a severe illness. Feelings of confusion rift between your role as a caregiver and your role as a daughter, son, spouse, grandchild, etc.
Conflict within your Family or Work Place
There may be disagreement within your family over what to do with an ill parent, for example. Or there may be bureaucracies at play within a care system that prevent you from taking control and doing what you see fit in the situation.
Not Enough Time
You might have obligations from work, children who expect your time and attention, friends who haven’t heard from you, and on top of all that, you need to take very close care of a sick loved one. In that mix, you never have the time to take care of yourself. Or maybe taking care of yourself might even feel selfish right now with all the other obligations.
What are the Signs of Caregiver Burnout?
If all these burdens add up, you should be on the lookout for caregiver burnout. You can recognize it by the following actions and feelings:
- Withdrawing from other close friends and family
- No longer finding joy in things you once enjoyed
- Feeling overwhelmed, hopeless, exhausted, and helpless
- Sudden changes in weight or your appetite
- Changes your sleep patterns
- Feeling a pessimistic outlook on life
- Getting sick more often than usual
- Experiencing impulses to hurt yourself or the person you are caring for
- Becoming more irritable, or find yourself making comments, saying, and doing things that are out of character for you
- Feeling emotionally and physically exhausted
What are the Five Stages of Burnout?
The five steps of burning out when caring for a loved one usually look like this:
Hopefulness and Optimism
When first caring for someone, you may have very high expectations for your capabilities. You may think that you will help the person you are caring for drastically and make an enormous difference through your caring acts. It can be helpful to manage these expectations from the beginning, especially if your loved one has a degenerative or fatal illness because when unrealistic expectations are not fulfilled, you may blame yourself.
Onset of Stress
You may begin to notice some common stress and anxiety symptoms. This could mean an inability to focus, avoidance in decision making, irritability, trouble sleeping, fatigue, headaches, etc.
A little stress is normal, especially if you are going through a familial illness. But chronic stress is a serious problem that can lead to burnout. The symptoms are similar to those of stage two, but they are more intense. For example, you may feel chronic exhaustion, experience panic attacks or nightmares, you may have anger lash outs or physical illness. This could also result in escapist activities, like substance abuse.
By the time you reach burnout, the symptoms are already critical. Here are some of what you might be experiencing:
- Feeling empty inside, obsessing over problems, or noticing behavioral changes.
- Neglecting your personal needs, isolate yourself, and doubt yourself.
- Feeling a desire to drop out of society and move away from the person you are caring for.
- Experiencing physical symptoms like chronic headaches or chronic stomach or bowel problems.
If you do not get the resources you need, burnout symptoms could become embedded in your life, and you could experience a serious physical or emotional problem. The signs of chronic burnout are burnout syndrome, chronic sadness, depression, and chronic physical issues. This could also lead to trauma.
How do I Manage my Caregiver Burnout?
We are commonly asked how to fix caregiver burnout, but instead of using the word “fix,” try to wonder instead how to “treat” caregiver burnout, because there is nothing wrong with you. Your symptoms are a sign that you are lucid and aware of your situation and environment. Your environment is just challenging right now, but you are not the problem.
Caregiver burnout can be treated by working on your mental health and perspective, or by reaching out and taking advantage of resources that are accessible to you.
Here are a few things that might help you ease the mental burden
Accept the Reality of the Situation
It might be tempting to search for someone to blame or look for clear answers where there are none. Your energy is better spent dwelling on things you can control, rather than dwelling on the unfairness of the situation.
Instead of wishing someone else would help more, or wishing you had more time, focus on the things within your control. Consider your response to problems rather than the problems themselves.
Meaning is not inherent; it is created, which brings us to the next step.
Find Your “Why”
If you have chosen to provide care, you did so for a reason. Instead of feeling forced into this circumstance, take power back by taking ownership of your own decision to provide care. Remember that your current actions are setting an example for your children or friends. Or maybe you are repaying a parent for the years they cared for you. Embrace these strong values that define you, and call on them when you are feeling helpless.
Don’t Let Caregiving Take Over Your Life
The most crucial step, even when it seems impossible, is to invest in yourself. Prioritize the things that are important to you. Imagine what your loved one might say if they were more lucid. It makes them feel better to see that you are feeling good. They will feed off your mood if you are happy, healthy, and calm.
Ask for Help
Asking for help is a sign of profound strength. Speak to your friends and family frankly and honestly about how you feel. Maybe they will even rise to the occasion.
Organize and delegate to your family members. Even people who don’t live nearby can help. One person can handle medical responsibilities; another person can handle the bills, run errands, buy groceries, and cook.
There are probably caregiver support groups in your area, and if not, you can find some online. There are also mental health sites that offer free chats or other affordable resources.
You cannot pour from an empty cup.
Taking care of yourself is not selfish. Sometimes it is the most selfless thing you can do. Caregiver burnout is treatable.
Reach out to neighbors, friends, and loved ones. You would be surprised by how many people are present to help you with caregiver burnout if you are honest about needing assistance. Reach out to a religious group, an online support group, friends and loved ones, and relinquish some control to them so you can sleep and have some alone time. You and your loved one will both be better for it.
Coping with Caregiver Stress and Alzheimer’s, The American Institute of Stress, https://www.stress.org/coping-with-caregiver-stress-and-alzheimers